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Resources
National
Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)
NIAMS, a part of the National Institutes of Health (NIH), leads the
Federal medical research effort in arthritis and musculoskeletal and
skin diseases. NIAMS supports research and research training throughout
the United States as well as on the NIH campus in Bethesda, MD, and
disseminates health and research information. The National Arthritis and
Musculoskeletal and Skin Diseases Information Clearinghouse (NAMSIC) is
a public service sponsored by NIAMS that provides health information and
information sources.
1 AMS Circle
Bethesda, MD 20892–3675
Phone: (301) 495–4484
TTY: (301) 565–2966
http://www.nih.gov/niams/
For additional
information on lupus, visit our World Wide Web site. NAMSIC participates
in the Combined Health Information Database (CHID), a large federally
supported database of information on a broad range of diseases and
related health issues, including lupus. CHID is on the Web at http://chid.nih.gov/.
National
Institute of Nursing Research
The National Institute of Nursing Research (NINR), a component of NIH,
supports research and research training in universities, hospitals,
research centers, and at NIH in areas related to health promotion and
disease prevention, managing the symptoms and disabilities of illness,
and improving the environment in which patient care is delivered.
Chronic diseases, such as lupus and arthritis, are among the six major
areas of emphasis for the Institute. For more information on the
Institute and its programs, contact the NINR Office of Science Policy
and Information at:
31 Center Drive
MSC 2178
Building 31, Room 5B10
Bethesda, MD 20892
Phone: (301) 496–0207
http://www.nih.gov/ninr/
Lupus
Foundation of America
The Lupus Foundation of America (LFA) is the main voluntary organization
devoted to lupus. LFA assists local chapters in providing services,
including education, referrals, and support groups, to people with
lupus; works to educate the public about lupus; and supports lupus
research. For more information, contact LFA at:
1300 Piccard
Drive, Suite 200
Rockville, MD 20850
Phone: (301) 670–9292 or
(800) 558–0121
http://internet-plaza.net/lupus/
SLE
Foundation
The SLE Foundation supports and encourages medical research to find the
cause and cure of lupus, and improve its diagnosis and treatment. It
also provides a wide variety of services to help lupus patients and
their families. In addition, this voluntary organization conducts a
broad-based public education program to raise awareness of lupus, and
increase understanding of this serious chronic autoimmune disease. For
more information, contact the SLE Foundation at:
149 Madison Ave.,
Suite 205
New York, NY 10016
Phone: (212) 685–4118
http://www.lupusny.org/
Association
of Rheumatology Health Professionals, American College of Rheumatology
The American College of Rheumatology (ACR) is an organization of doctors
and associated health professionals who specialize in arthritis and
related diseases of the bones, joints, and muscles. The Association of
Rheumatology Health Professionals (ARHP), a division of ACR, aims to
enhance the knowledge and skills of rheumatology health professionals
and to promote their involvement in rheumatology research, education,
and quality patient care. The Association also works to advance and
promote basic and continuing education in rheumatology for health
professionals who provide care to people with rheumatic diseases. For
more information, contact ARHP at:
1800 Century
Place Suite 250
Atlanta, GA 30345–4300
Phone: (404) 633–3777
http://www.rheumatology.org/
Arthritis
Foundation
The Arthritis Foundation is the major voluntary organization devoted to
supporting arthritis research and providing educational and other
services to individuals with arthritis. It publishes free pamphlets and
a magazine for members on all types of arthritis. It also provides
up-to-date information on research and treatment, nutrition, alternative
therapies, and self-management strategies. Chapters nationwide offer
exercise programs, classes, support groups, physician referral services,
and free literature. For more information, call your local chapter,
listed in the white pages of the phone book, or contact the Arthritis
Foundation at:
1330 W. Peachtree
Street
Atlanta, GA 30309
Phone: (800) 283–7800
http://www.arthritis.org/
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